PPMD’s program, established in 2014, recognizes facilities with outstanding neuromuscular programs providing comprehensive care with recognized standards to all living with Duchenne muscular dystrophy (DMD), a multi-systemic genetic disorder characterized by progressive muscle loss.
CHoR is part of Virginia Commonwealth University (VCU), and its Muscular Dystrophy Association Care Center offers a robust clinical and investigative program that features comprehensive Duchenne care as well as multiple clinical studies on DMD progression and management, a press release states. Under the guidance of Amy Harper, the center treats more than 60 Duchenne patients, promotes research, and recently added two pediatric neuromuscular specialists.
“Children, parents and families are at the heart of what we do every day,” said Harper, MD, a Child Neurology Society member and neuromuscular disease researcher who joined CHoR in 2016. “We’re honored to be recognized by PPMD, a group of dedicated parents and families, for our advocacy and innovation in the field of neuromuscular diseases.”